The Invisible Illness

Thu, 01 Mar 2007 04:00:00

THE INVISIBLE ILLNESS

Julie Levy

Over the years many medical professionals have wondered whether Chronic Fatigue Syndrome is actually a real disease. But now things have changed. The Center for Disease Control announced in 2006 that the condition isn't "merely" psychological, that it's real. It's also launched a $4.5-million public awareness campaign.

Never in my nightmares did I imagine I would be disabled at 35 and forced to move home with my mother and accept disability income. -Julie Levy

Julie at the beach

Julie Levy was a successful pharmaceutical representative when she was diagnosed with what was then called the "yuppie flu".

Julie's first reaction was laughter and disbelief. Then the life-altering effects of her condition became increasingly pronounced and she got depressed. But she's since learned to live with the disease, and now she's able to laugh again.

Katrina Berne is Julie's clinical psychologist. Katrina knows first hand how debilitating Chronic Fatigue Syndrome can be, because she has it as well. She talks to Dick about her journey from being a Type A personality to a Type "Z-z-z (sleepy)."

Dr. Katrina Berne

During the first 2 years of the illness I did not know slowing down was an option. I tried to fight through it and assumed it [CFS] would go away.

-Dr. Katrina Berne

Read Julie Levy's essay on living with CFS and see her painting
Find out more about Katrina Berne
Learn more about Chronic Fatigue Syndrome/ME here and here
Find out more about the CDC's Chronic Fatigue Syndrome Awareness Campaign
Do you have CFS? Find out here

Music heard in this story:
Blackberry Winter (Take 9) and Treasure Island, both from the album Priceless Jazz Collection: Keith Jarrett
Little Girl Blue from the album Keith Jarrett Trio: Tribute

Keith Jarrett also has chronic fatigue syndrome.

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Your Story - Touched By Kindness - Halima Voyles

Halima Voyles with her daughter

Halima Voyles grew up in Pakistan, the daughter of a diplomat.

Last summer, she went back to one of her family's homes for a visit, and was disappointed in herself when she realized she couldn't remember any of the domestic staff's names.

But she'll never forget one staff member, the household driver, who showed her an incredible act of kindness that Halima continues to find both humbling and exemplary.

This is the shawl Halima was given

Though the man had very little, he gave Halima a shawl to say thank you.

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The Story from American Public Media - The Invisible Illness

The Invisible Illness

THE INVISIBLE ILLNESS

Your Story - Touched By Kindness - Halima Voyles